There's much to see here. So, take your time, look around, and learn all there is to know about us. We hope you enjoy our site and check out our upcoming event below. Thank you WMMR for advertising our event!
The Par for the Harbor team is comprised of James’ family members. James has truly been a gift to our family, opening our eyes, minds and hearts to the needs of children, and their families, who have rare diseases or disorders.
James was born in July 2013. I had a normal pregnancy, up until my 38th week when my OB did an ultrasound that showed he was measuring small, only about 5 pounds at that time. I was sent in the first thing the next morning to see a maternal/fetal medicine OB to have a more specific ultrasound done to assess James' weight. At this appointment, he measured about 5 pounds 1 ounce and they said that there was a “blockage” in one of his umbilical vessels that was not causing him distress, but causing him to not receive the full nutrition he needed to grow and gain
Raise awareness for pediatric rare diseases and disorders, and to encourage continued research and support of those children and their families at the Children’s Hospital of Philadelphia (CHOP). We plan to do this in the same fashion that we live each day of our lives- with lots of love, laughter, and fun! We are hosting a yearly golf outing and reception with raffle baskets and gift prizes with all proceeds being donated to a specifically designated department within the Children’s Hospital of Philadelphia that deals with children who have rare diseases and disorders.